Walking

Since I moved to Vancouver in 1981 I have walked for many causes.  I did the AIDS Walk many times.  I did the Run For The Cure for breast cancer also many times.  Now I am doing the Walk for ALS. I had my heart in every walk I ever did, but this one seems much more urgent.
There is no treatment and no cure for this disease.  They don't even know the cause!

Money raised during this Walk goes to support people with ALS [60%] and toward research [40%].

Please consider making a donation -
http://my.e2rm.com/PersonalPage.aspx?registrationID=2218021&langPref=en-CA&Referrer=http%3a%2f%2fwww.walkforals.ca%2fbc    

Feeling fine

When people ask me " how are you" I often have the usual reaction and say " fine".  What I really should tell them is that the disease is progressing, but that my heart/soul/spirit is feeling fine.

All my limbs are weakening.  My hands can do very little, my arms are weak and my legs have very diminished strength.  The talking and swallowing muscles are starting to be affected.  I'm also developing some of the other unkind symptoms of this disease -excessive yawning, excess saliva.  The good news is that I had my breathing tested 10 days ago and my FVC was 98%.
The balance center in my brain has been affected.  That, in combination with my weak ankles and legs, has contributed to the three falls and many near misses I have had in the last two months.
But I really do feel " fine".