Friday, May 24, 2013

Hope




Yesterday I got the ALS BC newsletter. On the front page were thumbnail sketches of 8 prominent Canadian research developments that have happened in the last year. Those project all received funding from ALS Canada. It is because of things like this that I feel so passionate about raising awareness and raising funds. The funds support the research and the research supports the funds.
The Walk For ALS happens in my community tomorrow. Please consider raising a little hope by making a donation at http://my.e2rm.com/personalPage.aspx?SID=3633037&LangPref=en-CA
The page will be open until the end of the year.
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Wednesday, May 15, 2013

Identity & Independence


Physically, it's the loss of muscle and strength that is happening. As muscle disappears, so does functional ability. The fact that I can't hold a sewing needle is not a big loss to me. When I was able-bodied I had to take my pants out to be hemmed ! The losses that affect identity and independence are the hardest. Being a good cook has always been a strong part of my identity. That is slowly but surely being chipped away.  It's either difficult or impossible to open packages, peel and chop vegetables, trim or cut meat, drain a pot, pour a full kettle ... the list goes on.
Independence - it's the "firsts" of these losses that hurt the most. The first time I couldn't open the front door, do a button or a zipper, open a milk jug or a pop can, rip an envelope ... this list goes on as well. It's the first times that catch me by surprise. After the initial reaction (sometimes a mini-meltdown) we begin to problem solve. Either figure out a way to do it differently or accept that I need to ask for help.
Although there are lots of things I can't do (and I know there's a lot more to come) there are a lot of things I can do. I can wake up each morning and know that I will try for the best day possible. I will continue to have wonderful adventures with Margaret. I will appreciate the beauty in the world around me. I will revel in the joy of family and friends. I will love and be loved. I will laugh till I cry and cry till I laugh.                                                                                                    
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